My Sister, My Muse / by Maria Spadafora

Toddler Emma

I've been sticking a camera in my baby sister's face, and sometimes other body parts, pretty much all her life. A natural and talented performer, Emma Rose is usually up for it, whether I'm testing out a lens or experimenting with depth of field. I took so many photos of her and my brother on black and white 35mm film when they were growing up, she once quipped "Didn't they have colour in them days...?"

More recently Emma and I collaborated on a project to document her journey through corrective surgery for bilateral hip dysplasia. Having spent her life 'clicking' her hips into place in the same way others casually crack their knuckles, the pain and arthritis that developed over the years started to become unbearable, and it transpired she'd been born with hip sockets that hadn't formed normally, along with a tilted pelvis.

After a long four year wait (don't get me started on my frustration and fears for the NHS!) in November 2016 she finally had the first surgery to her right hip - a periacetabular osteotomy (PAO). Reconstructing her pelvis means she won't have to have hip replacements until she is older and she'll have the same surgery to the left side next year.

As I write this, almost four months after the surgery, her scar is immaculate, and she's walking really well on crutches (though still needs the wheelchair for distances).

She's my hero. On blinged-up crutches.